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米国ではさらに多くの疾患が新生児マススクリーニングの対象となりそうです。

このエントリーをはてなブックマークに追加

2012年06月29日(Fri) 10:50 by drharasho

米国から以下のニュースが流れてきています。

日本のニュース解説では触れられていないようですが、
この判決により、米国での新生児マススクリーニングが
全ての州で拡大スクリーニングとなる可能性があるようです。

米最高裁、医療保険改革法に合憲判決 「国民の勝利」とオバマ大統領
2012.06.29 Fri posted at: 10:23 JST
http://www.cnn.co.jp/usa/30007160.html

ワシントン(CNN) 米連邦最高裁は28日、オバマ大統領の主導で成立した
医療保険制度改革法を合憲とする判決を下した。同法に対しては依然として
保守層からの反発も根強く、11月の米大統領選挙に及ぼすのは必至とみら
れる。オバマ大統領は判決を受け、テレビ演説で「この法律によって安心して
暮らせるすべての国民にとっての勝利だ」と評価した。

---------------------------------------------------------------------------------------

このニュースにある 医療保険制度改革法、すなわち
the Patient Protection and Affordable Care Act により、
RUSPに載っている全ての疾患がスクリーニング対象となる、
という主旨のようです。

the initial screening for all conditions listed in
 the Recommended Uniform Screening Panel (RUSP)
as approved by the Secretary of the Department of
Health and Human Services must be covered.
 

重要なニュースですので、注意深く見守りたいと思います。

Genetic Alliance Applauds Supreme Court Decision on Affordable Care Act
Requires Insurance Companies to Cover Newborn Screening

Washington, DC - June 28, 2012 -
 Today, the Supreme Court upheld the Patient Protection and Affordable Care Act,
which contains several provisions pertaining to newborn screening. "For those of us
 impacted by genetic diseases, this is a triumph. Alleviating the burden of disease on
 families in the United States must be a priority and we are grateful the Supreme
Court understands this," said Sharon F. Terry President and CEO of Genetic Alliance.
Based on Section 2713 (a) of the Act, the initial screening for all conditions listed
 in the Recommended Uniform Screening Panel (RUSP) as approved by the Secretary
 of the Department of Health and Human Services must be covered. Natasha
Bonhomme, Director of Baby's First Test comments, "This is great news for babies
born in the US. We look forward to the continued work needed to ensure that
children will have access to full diagnostic and follow-up care."

Most notably, this includes screening for critical congenital heart disease and
 severe combined immunodeficiency, the two conditions most recently added to
 the RUSP (September 2011 and May 2010 respectively). Insurance companies
 have one year from when a condition is added to the RUSP to comply with the
mandate to cover screening for that condition. There are currently no states screening
 for every condition on the RUSP, but several are screening for all but one condition.
 To see what your state screens for, visit Baby's First Test. For more information
on which preventative services are covered by the Affordable Care Act,
go to Healthcare.gov.Christine Brown, Executive Director of the National PKU Alliance notes, "We are
pleased with the Supreme Court's Decision on the Affordable Care Act, since
the Act gives many protections needed for those living with genetic health conditions.
 While people with PKU and other chronic conditions can no longer be denied health
 insurance coverage, as the bill is implemented we hope policymakers will pay
 attention to those living with rare conditions and the impact of the health benefit
exchanges."For more information about how policies impact newborn screening,
visit www.BabysFirstTest.org.


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