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小児内分泌専門家の医師(聖徳大学児童学部児童学科教授 原田正平先生)のコラムや、先天性甲状腺機能低下症(クレチン症)をはじめ小児科関連に関する情報やサービスを掲載します。

小児癌に関する国際比較研究での検査済み濾紙血の使用について

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2011年02月01日(Tue) 15:38 by drharasho

小児癌に関する国際比較研究での検査済み濾紙血使用の、
倫理的、法的、社会的問題についてのシンポジウムが
2011年3月7、8日に、スイスのジュネーブで開催されるそうです。

日本でのきちんとした議論は未だ行われていません。

The Brocher Foundation

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1 February, 2011

Ethical, Legal, and Social Implications of Use of Neonatal Bloodspots (NBS)
in International Population Based studies of Childhood cancer


The purpose of this meeting is to identify the ethical requirements for use of
archived neonatal bloodspots and in particular the ethical requirements for
the use of Ancestral Informative Markers in childhood cancer research.

Brocher Foundation, Geneva (Switzerland), 7. - 8. March 2011

Ethical, Legal, and Social Implications of Use of Neonatal Bloodspots (NBS)
in International Population Based studies of Childhood cancer

ETHICAL ISSUES IN THE USE OF NEONATAL SCREENING BLOODSPOTS IN INTERNATIONAL
POPULATION-BASED STUDIES OF CHILDHOOD CANCER

In more and more countries around the world, bloodspots for neonatal screening of
diseases such as Phenylketonuria, congenital hypothyroidism, and Galactosaemia are
a routine part of medical care. In the past, few if any countries required a formal
informed consent for neonatal bloodspots to be collected and none required parental
consent for long-term storage of neonatal bloodspots for future medical research.
As molecular technology advances, use of these newborn biospecimens for a wide array
of environmental and genetic research is increasing and so are in parallel the ethical
and legal implications in their use. Neonatal bloodspots are exquisitely valuable
for international epidemiologic studies of childhood cancer and other diseases.
This epidemiologic research offers the possibility of understanding and preventing
many devastating diseases. However, use of a child’s archived neonatal bloodspots
for epidemiologic research without parental consent and use of molecularly identified
ethnicity to study disease association is controversial and currently the topic of
widespread debates.

The purpose of this meeting is to identify the ethical requirements for use of
rchived neonatal bloodspots and in particular the ethical requirements for
the use of Ancestral Informative Markers in childhood cancer research.

Registration is limited, so please book early by completing the attached Registration
Form and payment details. The form should be returned to the Brocher Foundation by mail,
email or fax: Fondation Brocher, 471 Rte d’Hermance, CP 70, 1248 Hermance, Switzerland.
The deadline for registration is 14 February 2011.

The Symposium is organized by Dr Toni Torresani (University of Zürich), Dr Ruth Etzel (WHO),
Dr Carol Kasten (National Institutes of Health, USA)


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